Your prayer has borne the most marvellous fruit, Jacob has this week played in three concerts, won a prestigious music competition, bought a new bicycle, been for a ten mile ride with ...
Thank you to everyone who could make it to Jake’s duet concert with Spencer Payne last week. It was a wonderful occasion, not only musically, but because so many good people ...
Jake’s latest news:- some good, some discouraging. He has been feeling reasonably well and enjoying playing chamber music with friends and is doing a duet concert at school in a ...
We have just heard the devastating news that Jacob’s leukaemia has relapsed and that there is very, very little chance now of a cure. The three consultants working with him have agreed ...
Jake has some very worrying raised glands in neck and adenoids which may be the return of the cancer or may be an over-reaction of his immune system. He has had a series of biopsies ...
Just a quick and happy update to say that Jake has been well (apart from his feet) since his last email. This week he is going to play in his first concert and become 21, both of which ...
Dear All, We have had many calls recently requesting another update so here it is! Jacob is really enjoying getting back to playing the piano, with such a lovely new instrument and ...
Our Dear Friends, We must update you on Jacob’s progress and are sorry to have left it so long. In short the news is mostly very good and we are mightily relieved after a year of ...
Dear All, This is Jacob speaking. It’s now exactly two weeks since my transplant and my blood test has shown that I have now reached a suitable level to be allowed to go home. This is ...
It’s now eleven months since this whole horrible saga began. Ben has now donated every part of his body that seemed appropriate, and Jacob has gratefully received them. The ...
Dear All, This is just a short email from us all to thank all who were able to come to our party on Thursday. I was hugely moved at the number of people who made it to give me such a ...
We’re having a lovely spell of freedom from hospital at home ’til we go back in on 18th June in preparation for the transplant in 24th. The sun’s been shining and ...
Dear all, It’s Jacob here again! Since my last email things have begun to move forward in preparation for my stem-cell transplant, which now has a set date for the 24th June. I’ve now ...
Dear Vivienne, Thanks for the email, we are all hanging in there, it's very stressful much of the time and no day is in anyway predictable. He is just about to have a new proceedure ...
Dear All, I thought it might be nice to take the opportunity, now I’m feeling relatively well, to write to you personally. I feel extremely grateful to my parents for keeping you all ...
Some much happier news at last! Jacob has been discharged from the Marsden this week with a massive bag of medication but FREEDOM for a while to recuperate from the last 2 hideous ...
Dear All, We thought we would write an update in a different way and give you what we think are the positive things and what we think are the things that still require more time. This ...
Dear All, Things are still moving fast. Though his brain operation went well, the staples (!) are out and it appears to have had the intended effect, Jake has been left on a continuous ...
Two wonderful bits of good news: Jake has started to play the piano again. We cannot begin to tell you how happy this makes us all. It’s not completely back to normal yet of ...
Dear McNenys, Happy easter to you all, we all had a great day here with nana, cathedral, meals, lambs easter egg hunts in garden and the countryside. Jake is still feeling good though ...
Hello I'm Vivienne McNeny, English to the core and I've just put the kettle on so while its boiling let me tell you a little about myself. I was raised in a convent boarding school while my parents diplomatically hosted cocktail parties at foreign Embassies. After performing in operettas as leading men and prima ballerinas I read child psychology at London Uni; flipped my speedboat while racing in the channel; taught windsurfing and water ski-ing in Southern Andalucia; an American fell in love with me in London and I took up homeschooling in Texas before our children were too old to object.