Dear All, Just a quickie to let you know that Jacob successfully got through the operation on his brain and the surgeon was able to take some of the infected fluid off the sizeable ...
Jacob had his brain operation. His wounds are pretty painful and the plaster and staples (!) stay on for 5-7 days. Hopefully they’ll send Jake back to Sutton this week, then ...
Dear All, Things are happeneing at such a rate we feel we must send you more news, Jake’s news is still not better we are sad to say. Within a day of recovering from a life ...
Just after I sent the last one we were given the unwelcome news from the CT scan that Jake has two areas of infection on his brain and some swelling which is the probable cause of the ...
Sorry today’s news is not good. Having thought that the roller coaster was slowing down after a week in intensive care and the gradual control of his lung infection, Jacob has now been ...
Thanks again for many kind messages and gifts. You’re all so good at thinking of positive and uplifting things to say, we know how difficult it is and really don’t expect ...
I hope this is not too much information too often for you. It’s hard to pitch it right, so please don’t feel burdened by too much and please don’t think you have to ...
Do we dare feel some cautious optimism here? Jake’s white cells (the ones that fight infection) are up a little bit. Although he is still totally dependent on the various ...
Dear All, We have decided to write a quick daily update on Jacob’s condition because it is so hard to keep up with the calls and texts. Please don’t feel you have to reply. ...
Our dear friends. not good news at the moment; we are afraid. Jake has had the most appalling few weeks and is currently in intensive care in a critical condition having serious ...
We are sorry to tell you that Jacob has had a sudden and very strong reaction to one of the drugs that he has to take which has left him in a deep and dangerous depression. He is ...
Please could you pass on many thanks to Lovanne and Carl Whatley for the very kind parcel for Jake. He especially liked the holding cross. A friend lent him one when he was first ill, ...
Christmas 2009 Dear Friends, Please imagine you have an immense, love filled, fluffy, wise men and robin bedecked card arriving on time on your doorstep for christmas, that bursts into ...
Dear friends, A brief update about Jake’s and our progress in the last month is well overdue. He has been at home for most of the past month now after our scare of late October. Jake’s ...
Jacob is relieved to have a week’s break from chemotherapy and instantly felt better. He hasn’t had another seizure but of course we are all very nervous in case it happens ...
Dear everyone, Jacob’s first bout of treatment in hospital ended in the remission that was hoped for. He had a couple of weeks break and has now started the next. These 4 weeks of ...
Dear Friends, Just an update since we have not written for a few weeks, largely because nothing new has happened. Jake has been continuing with a very intensive burst of Chemotherapy – ...
Jacob is doing well. He has had 2 1/2 weeks off chemo and felt tired but well and has had a lovely time with friends and family pushing the limits of what is allowed for a boy that ...
Dear Friends, At last some good news – after the gruelling week we described in the last letter we needed some – Jacob’s intensive chemotherapy for five and a half weeks has left him in ...
Jacob does his best almost all the time to lighten the mood, allay our badly hidden anxieties and maintain positivity. His piano playing has gained a wonderful serenity and space ...
Hello I'm Vivienne McNeny, English to the core and I've just put the kettle on so while its boiling let me tell you a little about myself. I was raised in a convent boarding school while my parents diplomatically hosted cocktail parties at foreign Embassies. After performing in operettas as leading men and prima ballerinas I read child psychology at London Uni; flipped my speedboat while racing in the channel; taught windsurfing and water ski-ing in Southern Andalucia; an American fell in love with me in London and I took up homeschooling in Texas before our children were too old to object.