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Read my personal blog - Emptying the nest one feather at a time
September 20th, 11 – Jake 53
/ September 20, 2011
Dear Friends, We have not written since Jacob’s funeral and wanted to write just once more to thank you all so much for your kind sympathy and support. As you can ...
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December 21st, 10 – Jake 32
/ December 21, 2010 0 COMMENTS
We have just heard the devastating news that Jacob’s leukaemia has relapsed and that there is very, very little chance now of a cure.  The three consultants working with him have agreed ...
December 19th, 10 – Jake 31
/ December 21, 2010 0 COMMENTS
Jake has some very worrying raised glands in neck and adenoids which may be the return of the cancer or may be an over-reaction of his immune system.  He has had a series of biopsies ...
October 21st, 10 – Jake 30
/ December 21, 2010 0 COMMENTS
Just a quick and happy update to say that Jake has been well (apart from his feet) since his last email. This week he is going to play in his first concert and become 21, both of which ...
September 24th, 10 – Jake 29
/ December 21, 2010 0 COMMENTS
Dear All, We have had many calls recently requesting another update so here it is! Jacob is really enjoying getting back to playing the piano, with such a lovely new instrument and ...
August 14th, 10 – Jake 28
/ August 31, 2010 0 COMMENTS
Our Dear Friends, We must update you on Jacob’s progress and are sorry to have left it so long. In short the news is mostly very good and we are mightily relieved after a year of ...
July 9th, 10 – Jake 27
/ August 31, 2010 0 COMMENTS
Dear All, This is Jacob speaking. It’s now exactly two weeks since my transplant and my blood test has shown that I have now reached a suitable level to be allowed to go home. This is ...
June 28th, 10 – Jake 26
/ August 31, 2010 0 COMMENTS
It’s now eleven months since this whole horrible saga began. Ben has now donated every part of his body that seemed appropriate, and Jacob has gratefully received them. The ...
June 20th, 10 – Jake 25
/ August 31, 2010 0 COMMENTS
Dear All, This is just a short email from us all to thank all who were able to come to our party on Thursday.  I was hugely moved at the number of people who made it to give me such a ...
June 6th, 10 – Jake 24
/ August 31, 2010 0 COMMENTS
We’re having a lovely spell of freedom from hospital at home ’til we go back in on 18th June in preparation for the transplant in 24th. The sun’s been shining and ...
May 29th, 10 – Jake 23
/ August 31, 2010 0 COMMENTS
Dear all, It’s Jacob here again! Since my last email things have begun to move forward in preparation for my stem-cell transplant, which now has a set date for the 24th June. I’ve now ...
May 27th, 10 – Jake 22
/ August 31, 2010 0 COMMENTS
Dear Vivienne, Thanks for the email, we are all hanging in there, it's very stressful much of the time and no day is in anyway predictable. He is just about to have a new proceedure ...
April 30th, 10 – Jake 21
/ August 31, 2010 0 COMMENTS
Dear All, I thought it might be nice to take the opportunity, now I’m feeling relatively well, to write to you personally. I feel extremely grateful to my parents for keeping you all ...
April 3rd, 10 – Jake 19
/ August 31, 2010 0 COMMENTS
Some much happier news at last! Jacob has been discharged from the Marsden this week with a massive bag of medication but FREEDOM for a while to recuperate from the last 2 hideous ...
March 16th, 10 – Jake 18
/ August 31, 2010 0 COMMENTS
Dear All, We thought we would write an update in a different way and give you what we think are the positive things and what we think are the things that still require more time. This ...
March 3rd, 10 – Jake 17
/ August 31, 2010 0 COMMENTS
Dear All, Things are still moving fast. Though his brain operation went well, the staples (!) are out and it appears to have had the intended effect, Jake has been left on a continuous ...
April 17th, 10 – Jake 20
/ August 31, 2010 0 COMMENTS
Two wonderful bits of good news: Jake has started to play the piano again. We cannot begin to tell you how happy this makes us all. It’s not completely back to normal yet of ...
April 4th, 10 – Jake 19(2)
/ August 31, 2010 0 COMMENTS
Dear McNenys,  Happy easter to you all, we all had a great day here with nana, cathedral, meals, lambs easter egg hunts in garden and the countryside. Jake is still feeling good though ...
February 25th, 10 – Jake 16
/ August 29, 2010 0 COMMENTS
Dear All, Just a quickie to let you know that Jacob successfully got through the operation on his brain and the surgeon was able to take some of the infected fluid off the sizeable ...
February 24th, 10 – Jake 15(2)
/ August 29, 2010 0 COMMENTS
Jacob had his brain operation.  His wounds are pretty painful and the plaster and staples (!) stay on for 5-7 days. Hopefully they’ll send Jake back to Sutton this week, then ...
February 22nd, 10 – Jake 15
/ August 29, 2010 0 COMMENTS
Dear All, Things are happeneing at such a rate we feel we must send you more news, Jake’s news is still not better we are sad to say.  Within a day of recovering from a life ...

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